Mindset Matters
Recently upon traveling one of my own journeys along the rare disease path I was inspired by a number of individuals who stepped up to a challenge I set forth.
Time for a deeper reflection
What I have found over the past few weeks is that I have a lot to learn not only about racial injustice but about how people with disabilities also face social injustices.
COVID Effects in Many Ways
At the risk of sounding selfish in our current time of CoVid19, I am a small time event promoter, who is struggling hard about what to do with my event this year.
It's a While.... Since I've Seen you
Let’s come together as a nation, as a world, as the human race to insight strong, ethical, logical, health conscious decisions for the modern world.
7/17/2019 RAS Gravel Recap
Personally I cannot put all my thoughts into words right now however I will say every year that passes running this event makes me want to do it again in 364 days.
5/18/2019 Spring Sprung?.... Not! Well Maybe
The Bittersweet 3.0 event was all about food, nourishment and community for women cyclists.
3/22/2019 Spring Thoughts
Winter is long, hard usually is .. . especially for folks with a rare disease. Icy streets, cold temps, weak warmth of the winter sun. But think about the caregivers who we sometimes take for granted.
2/19/2019 The Mighty
This is a piece from the Mighty, a health topic related website. It strikes a cord not only from our own experiences with Shane but many others who we know who’s kids suffer from a rare disease or developmental issues.
February 2019
This February 28th, do what can you do to help elevate the cause and shine a light on rare disease patients and caregivers around the world.
Holiday Fundraiser 2018
I am often taking aback by the sheer generosity of some people. To give of oneself so altruistically for the good or betterment of someone else, is a gift.
10/1/2018 VT 50 Recap
I was so fired up to ride this event again this year. I started off slower and a bit more patient then the year prior even though I was feeling pretty good and much more confident riding my Giant Trance then my hardtail I suffered on last year.
11/20/2018 One week until #givingtuesday
Giving - Giving Tuesday for any rare ones that love winter sports!
11/7/2018 #givingtuesday
Giving Tuesday, November 27th is right around the corner. Make an Impact, Give, Support~ find Cures!