Recently upon traveling one of my own journeys along the rare disease path I was inspired by a number of individuals who stepped up to a challenge I set forth.
Read MoreWhat I have found over the past few weeks is that I have a lot to learn not only about racial injustice but about how people with disabilities also face social injustices.
Read MoreIt pains me to see what is going on across this great nation.
Read MoreAt the risk of sounding selfish in our current time of CoVid19, I am a small time event promoter, who is struggling hard about what to do with my event this year.
Read MoreLet’s come together as a nation, as a world, as the human race to insight strong, ethical, logical, health conscious decisions for the modern world.
Read MorePersonally I cannot put all my thoughts into words right now however I will say every year that passes running this event makes me want to do it again in 364 days.
Read MoreThe Bittersweet 3.0 event was all about food, nourishment and community for women cyclists.
Read MoreWinter is long, hard usually is .. . especially for folks with a rare disease. Icy streets, cold temps, weak warmth of the winter sun. But think about the caregivers who we sometimes take for granted.
Read MoreThis is a piece from the Mighty, a health topic related website. It strikes a cord not only from our own experiences with Shane but many others who we know who’s kids suffer from a rare disease or developmental issues.
Read MoreThis February 28th, do what can you do to help elevate the cause and shine a light on rare disease patients and caregivers around the world.
Read MoreI am often taking aback by the sheer generosity of some people. To give of oneself so altruistically for the good or betterment of someone else, is a gift.
Read MoreI was so fired up to ride this event again this year. I started off slower and a bit more patient then the year prior even though I was feeling pretty good and much more confident riding my Giant Trance then my hardtail I suffered on last year.
Read MoreGiving - Giving Tuesday for any rare ones that love winter sports!
Read MoreGiving Tuesday, November 27th is right around the corner. Make an Impact, Give, Support~ find Cures!
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