3/22/2019 Spring Thoughts

Winter is long, hard usually is .. . especially for folks with a rare disease. Icy streets, cold temps, weak warmth of the winter sun. But think about the caregivers who we sometimes take for granted.

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Jack Bailey
2/19/2019 The Mighty

This is a piece from the Mighty, a health topic related website. It strikes a cord not only from our own experiences with Shane but many others who we know who’s kids suffer from a rare disease or developmental issues.

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Jack Bailey
February 2019

This February 28th, do what can you do to help elevate the cause and shine a light on rare disease patients and caregivers around the world.

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Jack Bailey
10/1/2018 VT 50 Recap

I was so fired up to ride this event again this year. I started off slower and a bit more patient then the year prior even though I was feeling pretty good and much more confident riding my Giant Trance then my hardtail I suffered on last year.

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Jack Bailey