Global Genes

Global Genes' missions is to eliminate the challenges of rare disease. They build awareness, educate the global community, and provide critical connections and resources that equip advocates to become activists.

National Organization for Rare Disorders

NORD is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.  NORD, along with its more than 260 patient organization members,  is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.