6/5/2017 Smaller World

You know our gig, attempting to bring the rare disease community together any way we can.  Since February we have made three educational presentations at local schools and colleges.  As you may or may not know, Vermont Rare is a sponsor of the Vermont Overland Gravel Bike Team for that very reason, spreading the word, sparking conversation.  VT Rare also sponsors the RAS Gravel Adventure Ride coming up on June 24th, https://www.bikereg.com/ras-adventure-ride--10krun-run

This weekend while riding another great gravel event in Brattleboro standing true to our word of "sparking conversation" and in need of a good coffee, I decided to head into town and visit a few local bike shops.  Upon doing so I ran into Burrows Sports on Main Street.  I was completely taken back by the friendly women behind the counter who after getting into conversation about my RAS Gravel Ride, come to find out, we had a lot in common.  So much that by the end of the conversation we were both welling up with tears and I wanted to reach over the counter and hug the women.  Just knowing that someone else feels your pain, knows there is always hope, stay strong Julia for yourself and your family.  I can see your an amazing mom and knows there are other out there standing beside you.  Thanks for sharing!