Rare Disease Day 2017

So happy to be here in DC for the Rare Disease Conference and get a chance to lobby with lawmakers tomorrow on Capitol Hill. What an opportunity to meet people, network, share idea and get a whole new education. Even after being here only one day, I can see this being an annual stop on our tour of educating, advocacy and supporting families who cope with some form of rare disease. 

There are 7,000 rare diseases which affects more than 350,000,000 worldwide and 95% of them still have no treatment. Staggering statistics, so we'll continue to spark conversation and try to make them not so rare.