Million Dollar Bike Ride

SATURDAY, June 8, 2019
Philadelphia, Pennsylvania

The Million Dollar Bike Ride brings over 600 cyclists and volunteers to Penn’s campus to ride either 15, 34, or 74 miles starting in the city, and ranging across the Greater Philadelphia region. In four years, the MDBR’s 20+ teams have raised over $7.5 million to fund research grants on the diseases they represent. The ODC ensures that 100% of the funds raised goes towards these pilot grants, with no overhead. This year our team, RASopathies Riders, was granted $74k for RASopathies.

RAS Gravel Ride

Saturday, June 29th, 2019
Peru, Vermont

A passionate cyclist broadening the connection between cycling, community, and Rare Disease. I started this endeavor five years ago and have been a passionate cyclist with a cause.  Searching for answers, research dollars, educating himself as well as others is one of his top priorities for Shane his youngest son who suffers from a rare genetic disease.  So if you too are passionate about something; enjoy the connection between cycling and community, do things with a purpose and are excited about a new challenge, come join us!


Climbing on Two Wheels ~101

June 13-22 2020

My love of cycling, building relationships, climbing and the Austrian Alps makes this dream of mine a reality. I’d love to share with you the same mountain roads that I have had the opportunity to ride over the years. So I have decided to bring you there, show you the routes, enjoy each others company while staying in a 4 star hotel, in a small mountain village all within a 3 hour drive from Munich and 1.5 from the historic Austrian city of Innsbruck.

More info to follow but message me @vermontrare802 email;

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